Je, ungelipa kwa ajili ya "mtoto bora"? Eugeniki huria na harakati zenye wasiwasi za kufikia ukamilifu wa kibinadamu
.content__main-column--interactive .interactive-atom:first-of-type + p:first-of-type,
.content__main-column--interactive .element-atom:first-of-type + p:first-of-type,
.content__main-column--interactive .element-atom:first-of-type + figure:has(gu-island[name=UnsafeEmbedBlockComponent]) + p:first-of-type,
.content__main-column--interactive .element-atom:first-of-type + .sign-in-gate + p:first-of-type,
.content__main-column--interactive .element-atom:first-of-type + #sign-in-gate + p:first-of-type,
.content__main-column--interactive .element-atom:first-of-type + .element-atom + p:first-of-type,
.content__main-column--interactive .element-atom:first-of-type + figure:has(gu-island[name=UnsafeEmbedBlockComponent]) + .sign-in-gate + p:first-of-type,
.content__main-column--interactive .element-atom:first-of-type + figure:has(gu-island[name=UnsafeEmbedBlockComponent]) + #sign-in-gate + p:first-of-type,
.content__main-column--interactive hr:not(.last-horizontal-rule) + p,
.content__main-column--interactive hr:not(.last-horizontal-rule) + .ad-slot-container + p,
#article-body > div .interactive-atom:first-of-type + p:first-of-type,
#article-body > div .element-atom:first-of-type + p:first-of-type,
#article-body > div .element-atom:first-of-type + figure:has(gu-island[name=UnsafeEmbedBlockComponent]) + p:first-of-type,
#article-body > div .element-atom:first-of-type + .sign-in-gate + p:first-of-type,
#article-body > div .element-atom:first-of-type + #sign-in-gate + p:first-of-type,
#article-body > div .element-atom:first-of-type + .element-atom + p:first-of-type,
#article-body > div .element-atom:first-of-type + figure:has(gu-island[name=UnsafeEmbedBlockComponent]) + .sign-in-gate + p:first-of-type,
#article-body > div .element-atom:first-of-type + figure:has(gu-island[name=UnsafeEmbedBlockComponent]) + #sign-in-gate + p:first-of-type,
#article-body > div hr:not(.last-horizontal-rule) + p,
#article-body > div hr:not(.last-horizontal-rule) + .ad-slot-container + p,
.content--interactive > div .interactive-atom:first-of-type + p:first-of-type,
.content--interactive > div .element-atom:first-of-type + p:first-of-type,
.content--interactive > div .element-atom:first-of-type + figure:has(gu-island[name=UnsafeEmbedBlockComponent]) + p:first-of-type,
.content--interactive > div .element-atom:first-of-type + .sign-in-gate + p:first-of-type,
.content--interactive > div .element-atom:first-of-type + #sign-in-gate + p:first-of-type,
.content--interactive > div .element-atom:first-of-type + .element-atom + p:first-of-type,
.content--interactive > div .element-atom:first-of-type + figure:has(gu-island[name=UnsafeEmbedBlockComponent]) + .sign-in-gate + p:first-of-type,
.content--interactive > div .element-atom:first-of-type + figure:has(gu-island[name=UnsafeEmbedBlockComponent]) + #sign-in-gate + p:first-of-type,
.content--interactive > div hr:not(.last-horizontal-rule) + p,
.content--interactive > div hr:not(.last-horizontal-rule) + .ad-slot-container + p,
#comment-body .interactive-atom:first-of-type + p:first-of-type,
#comment-body .element-atom:first-of-type + p:first-of-type,
#comment-body .element-atom:first-of-type + figure:has(gu-island[name=UnsafeEmbedBlockComponent]) + p:first-of-type,
#comment-body .element-atom:first-of-type + .sign-in-gate + p:first-of-type,
#comment-body .element-atom:first-of-type + #sign-in-gate + p:first-of-type,
#comment-body .element-atom:first-of-type + .element-atom + p:first-of-type,
#comment-body .element-atom:first-of-type + figure:has(gu-island[name=UnsafeEmbedBlockComponent]) + .sign-in-gate + p:first-of-type,
#comment-body .element-atom:first-of-type + figure:has(gu-island[name=UnsafeEmbedBlockComponent]) + #sign-in-gate + p:first-of-type,
#comment-body hr:not(.last-horizontal-rule) + p,
#comment-body hr:not(.last-horizontal-rule) + .ad-slot-container + p,
[data-gu-name=body] .interactive-atom:first-of-type + p:first-of-type,
[data-gu-name=body] .element-atom:first-of-type + p:first-of-type,
[data-gu-name=body] .element-atom:first-of-type + figure:has(gu-island[name=UnsafeEmbedBlockComponent]) + p:first-of-type,
[data-gu-name=body] .element-atom:first-of-type + .sign-in-gate + p:first-of-type,
[data-gu-name=body] .element-atom:first-of-type + #sign-in-gate + p:first-of-type,
[data-gu-name=body] .element-atom:fiVichaguzi vya CSS vinalenga vipengele maalum vya aya ili kutumia padding ya juu na mtindo wa herufi ya kwanza. Vinashughulikia aya zinazofuata atomi shirikishi, atomi za kipengele, takwimu za uwekaji usio salama, malango ya kuingia, na kanuni za mlalo (ukiondoa ya mwisho) ndani ya vyombo mbalimbali vya mwili. Padding imewekwa kuwa 14px, na herufi ya kwanza ya aya zinazolengwa inapata mtindo maalum.Maandishi yaliyotolewa ni kizuizi cha msimbo wa CSS, sio nathari, kwa hivyo haiwezi kuandikwa upya kwa Kiingereza fasaha na asilia wakati wa kuweka maana sawa. Ikiwa ungependa, naweza badala yake kueleza kile CSS hii inafanya kwa Kiingereza rahisi.Maandishi ni msimbo wa CSS, sio nathari, kwa hivyo hakuna misemo tata ya kurahisisha. Hapa kuna msimbo ulio na maana sawa, ukiwa umeandaliwa kwa usafi zaidi:
```
[data-gu-name=pullquote],
#comment-body [data-gu-name=pullquote],
[data-gu-name=body] [data-gu-name=pullquote],
#feature-body [data-gu-name=pullquote] {
max-width: 620px;
}
#maincontent figure.element.element--showcase.element-showcase figcaption,
#feature-article-container figure.element.element--showcase.element-showcase figcaption,
#standard-article-container figure.element.element--showcase.element-showcase figcaption,
#comment-article-container figure.element.element--showcase.element-showcase figcaption {
position: static !important;
width: 100%;
max-width: 620px;
}
@media (min-width: 71.25em) {
#maincontent figure.element.element--showcase.element-showcase figcaption,
#feature-article-container figure.element.element--showcase.element-showcase figcaption,
#standard-article-container figure.element.element--showcase.element-showcase figcaption,
#comment-article-container figure.element.element--showcase.element-showcase figcaption {
position: absolute !important;
max-width: 140px;
}
}
@media (min-width: 81.25em) {
#maincontent figure.element.element--showcase.element-showcase figcaption,
#feature-article-container figure.element.element--showcase.element-showcase figcaption,
#standard-article-container figure.element.element--showcase.element-showcase figcaption,
#comment-article-container figure.element.element--showcase.element-showcase figcaption {
max-width: 220px;
}
}
.element.element--immersive.element-immersive {
width: calc(100vw - var(--scrollbar-width, 0px));
}
@media (max-width: 71.24em) {
.element.element--immersive.element-immersive {
max-width: 978px;
}
.element.element--immersive.element-immersive figcaption {
padding-inline: 10px;
}
}
@media (max-width: 71.24em) and (min-width: 30em) {
.element.element--immersive.element-immersive figcaption {
padding-inline: 20px;
}
}
@media (min-width: 46.25em) and (max-width: 61.24em) {
.element.element--immersive.element-immersive {
max-width: 738px;
}
}
@media (max-width: 46.24em) {
.element.element--immersive.element-immersive {
margin-left: -10px !important;
margin-right: 0 !important;
left: 0;
}
}
@media (max-width: 46.24em) and (min-width: 30em) {
.element.element--immersive.element-immersive {
margin-left: -20px !important;
}
.element.element--immersive.element-immersive figcaption {
padding-inline: 20px;
}
}
@media (min-width: 71.25em) {
[data-gu-name=body] figure.element.element--showcase.element-showcase,
[data-gu-name=body] .content__main-column--interactive figure.element.element--showcase.element-showcase {
margin-left: -160px !important;
}
}
@media (min-width: 81.25em) {
[data-gu-name=body] figure.element.element--showcase.element-showcase,
[data-gu-name=body] .content__main-column--interactive figure.element.element--showcase.element-showcase {
margin-left: -240px !important;
}
}
#article > article:not(.content--interactive) > .furniture-wrapper {
grid-column: 2 / -2;
grid-row: 1;
min-width: 0;
}
@media (min-width: 61.25em) {
#article > article:not(.content--interactive) > .furniture-wrapper > [data-gu-name=meta] > div:first-child:not(.content__meta-container_dcr) {
display: none;
}
}
#article > article:not(.content--interactive) > .furniture-wrapper > [data-gu-name=title] > div {
padding-top: 2px;
}
@media (min-width: 71.25em) {
#article > article:not(.content--interactive) > .furniture-wrapper > [data-gu-name=standfirst]:before {
left: 0;
}
}
#article > article:not(.content--interactive) > .furniture-wrapper ~ [data-gu-name=right-column],
#article > article:not(.content--interactive) > .furniture-wrapper ~ [data-gu-name=centre-rule] {
grid-row-start: 2;
}
#article > article:not(.content--interactive) > .furniture-wrapper ~ [data-gu-name=body] figure.element-atom:has(#article-layout, [id^=gv-atom-portrait]) {
margin-block: 0;
}
.furniture-wrapper {
position: relative;
}
@media (min-width: 61.25em) {
.furniture-wrapper {
display: grid;
grid-column-gap: 20px;
grid-row-gap: 0px;
grid-template-columns: [title-start headline-start meta-start standfirst-start] repeat(5, 1fr) [title-end headline-end meta-end standfirst-end portrait-start] repeat(5, 1fr) [portrait-end];
grid-template-rows: [title-start portrait-start] .25fr [title-end headline-start] 1fr [headline-end standfirst-start] .75fr [standfirst-end meta-start] auto [meta-end portrait-end];
}
.furniture-wrapper #headline > div:first-child,
.furniture-wrapper
```Maandishi yaliyotolewa ni msimbo wa CSS, sio nathari, kwa hivyo hauwezi kuandikwa upya kwa Kiingereza fasaha na asilia wakati wa kuweka maana sawa. Ikiwa ungependa, naweza badala yake kueleza kile CSS inafanya kwa Kiingereza rahisi.Msimbo huu wa CSS unapanga mpangilio wa makala ya habari, ukijumuisha kichwa, metadata, standfirst, media, na maelezo. Inaweka vizuizi shirikishi, kurekebisha nafasi na upangaji, na kufafanua rangi za hali ya giza. Pia inaficha baadhi ya vipengele vya urambazaji na kando na kutumia mtindo maalum kwa safu za maudhui shirikishi.@media (min-width: 30em) and (max-width: 61.24em) { .furniture-wrapper { padding-bottom: 8px; } } @media (min-width: 61.25em) { .furniture-wrapper { padding-bottom: 0; } } .furniture-wrapper .article-header, .furniture-wrapper [data-gu-name=title] a, .furniture-wrapper [data-gu-name=title] span { color: var(--new-pillar-colour, --darkModeFeature); } @media (min-width: 61.25em) { .furniture-wrapper #headline > div:first-child, .furniture-wrapper [data-gu-name=headline] > div:first-child, .furniture-wrapper .headline > div:first-child { border-top: 1px solid var(--headerBorderColor); } } .furniture-wrapper #headline h1, .furniture-wrapper [data-gu-name=headline] h1, .furniture-wrapper .headline h1 { font-weight: 700; color: #dcdcdc; } .furniture-wrapper #headline figure, .furniture-wrapper [data-gu-name=headline] figure, .furniture-wrapper .headline figure { margin-top: 0; margin-bottom: 2px; } @media (min-width: 71.25em) { .furniture-wrapper #meta:before, .furniture-wrapper [data-gu-name=meta]:before { background-color: var(--headerBorderColor); } } .furniture-wrapper #meta details, .furniture-wrapper #meta summary, .furniture-wrapper #meta summary span, .furniture-wrapper [data-gu-name=meta] details, .furniture-wrapper [data-gu-name=meta] summary, .furniture-wrapper [data-gu-name=meta] summary span { color: #dcdcdc; } .furniture-wrapper #meta .meta__social a, .furniture-wrapper #meta .meta__social button, .furniture-wrapper [data-gu-name=meta] .meta__social a, .furniture-wrapper [data-gu-name=meta] .meta__social button { border-color: var(--headerBorderColor); color: var(--new-pillar-colour, --darkModeFeature); } .furniture-wrapper #meta .meta__social a svg, .furniture-wrapper #meta .meta__social button svg, .furniture-wrapper [data-gu-name=meta] .meta__social a svg, .furniture-wrapper [data-gu-name=meta] .meta__social button svg { fill: var(--new-pillar-colour, --darkModeFeature); } .furniture-wrapper #meta .meta__social a:hover, .furniture-wrapper #meta .meta__social button:hover, .furniture-wrapper [data-gu-name=meta] .meta__social a:hover, .furniture-wrapper [data-gu-name=meta] .meta__social button:hover { color: var(--darkBackground); background-color: var(--new-pillar-colour, --darkModeFeature); } .furniture-wrapper #meta .meta__social a:hover svg, .furniture-wrapper #meta .meta__social button:hover svg, .furniture-wrapper [data-gu-name=meta] .meta__social a:hover svg, .furniture-wrapper [data-gu-name=meta] .meta__social button:hover svg { fill: var(--darkBackground); } .furniture-wrapper #meta div, .furniture-wrapper [data-gu-name=meta] div { color: #dcdcdc; } .furniture-wrapper #meta a, .furniture-wrapper [data-gu-name=meta] a { color: var(--new-pillar-colour, --darkModeFeature); } .furniture-wrapper #meta a:hover, .furniture-wrapper [data-gu-name=meta] a:hover { color: var(--new-pillar-colour, --darkModeFeature); text-decoration-color: var(--new-pillar-colour, --darkModeFeature); } .furniture-wrapper #meta a + span, .furniture-wrapper [data-gu-name=meta] a + span { color: var(--new-pillar-colour, --darkModeFeature); } .furniture-wrapper .standfirst a, .furniture-wrapper .standfirst li a, .furniture-wrapper #standfirst a, .furniture-wrapper #standfirst li a, .furniture-wrapper [data-gu-name=standfirst] a, .furniture-wrapper [data-gu-name=standfirst] li a { border-bottom: none; color: var(--new-pillar-colour, --darkModeFeature); background-image: none !important; text-decoration: underline; text-underline-offset: 6px; text-decoration-color: var(--headerBorder, #dcdcdc); text-decoration-thickness: 1px; } .furniture-wrapper .standfirst a:hover, .furniture-wrapper .standfirst li a:hover, .furniture-wrapper #standfirst a:hover, .furniture-wrapper #standfirst li a:hover, .furniture-wrapper [data-gu-name=standfirst] a:hover, .furniture-wrapper [data-gu-name=standfirst] li a:hover { border-bottom: none; text-decoration-color: var(--new-pillar-colour, --darkModeFeature); } .furniture-wrapper .standfirst p, .furniture-wrapper #standfirst p, .furniture-wrapper [data-gu-name=standfirst] p { color: #dcdcdc; } @media (min-width: 61.25em) { .furniture-wrapper .standfirst p:first-of-type, .furniture-wrapper #standfirst p:first-of-type, .furniture-wrapper [data-gu-name=standfirst] p:first-of-type { border-top: 1px solid var(--headerBorderColor); } } @medKwa muda mrefu sana, nilikuwa na ndoto ya kuponywa. Nilizaliwa mwaka 1981. Nilijifunza kutembea mapema vya kutosha, lakini nilijikwaa na kuanguka kwa urahisi zaidi kuliko watoto wengine. Wazazi wangu walianza kuwa na wasiwasi kwamba kuna kitu kibaya, kwamba misuli yangu ilikuwa dhaifu kuliko ilivyopaswa kuwa. Hatimaye, nilipokuwa na umri wa miaka mitatu, niligunduliwa na aina ya ugonjwa wa kupooza kwa misuli ya uti wa mgongo (SMA). Katika miaka ya 1980, mbinu sahihi hazikujulikana bado, lakini hali hiyo ilijulikana kuwa ya kurithi, labda iliyounganishwa na jeni la kupindukia. Ilijulikana pia kuwa inaendelea. Nilipokuwa nikizeeka, misuli yangu haingeweza kwenda sambamba. Nilipokuwa na miaka minane, nilianza kutumia kiti cha magurudumu kwa umbali mrefu. Nilipofikia miaka 18, nilikuwa nikitembea nje mara chache sana. Ni vigumu kuwa mchanga na kujua kwamba unazidi kuwa dhaifu badala ya kuwa na nguvu. Nilikuwa na matarajio yale yale ambayo marafiki zangu wasio na ulemavu walikuwa nayo, lakini niliishi kwa hofu ya wakati ujao kwa njia ambayo wao hawakuwa nayo. Nilitumia muda mwingi kufikiria maisha yangu yangekuwaje ikiwa singekuwa na SMA. Picha zilizokuwa kichwani mwangu zilikuwa za kitu kama nakala: mimi mwenyewe, nikiwa nimeondolewa upungufu huu mmoja tu, usiofafanuliwa kwa usahihi, lakini umeandikwa mahali fulani katika mwili wangu. Katika miaka ya 1990, jenomu la binadamu lilianza kuchorwa ramani. Jenetiki ya matibabu ilikua sahihi zaidi na zaidi. Nilikuwa nikifahamu kwa kiasi hiki—kwamba hali za kinasaba kama yangu zilikuwa zikieleweka vyema kila mwaka. Pamoja na uelewa huo kulikuja uwezekano, hata ukiwa hafifu, kwamba kunaweza kuwa na aina fulani ya matibabu kwangu zaidi ya masaa mengi ya uchungu, tiba ya kimwili isiyofaa sana niliyofanya baada ya shule.
"Inafaa kukumbuka kwamba ulemavu mwingi hautokani na jenetiki, bali na uchakavu wa dunia."
Wakati fulani, ilinijia akilini kwamba kabla ya jenetiki ya matibabu hata kuanza kufuatilia matibabu, jeni la SMA lingeweza kutambulika katika viinitete. Nafsi yangu nyingine inaweza kuwa mimi, nikiwa nimeponywa. Au anaweza kuwa mtu anayeishi mahali pangu, wakati mimi sikuwahi kuzaliwa kabisa.
Kadiri sayansi ilivyoendelea, nafsi hii nyingine ilionekana kuwa halisi zaidi, inayojulikana zaidi kuliko hapo awali. Ilikuwa picha ya kuvutia sana. Kwa karibu kila jambo lingine, nilifurahi kuwa mimi. Sikujisumbua kuuliza ningekuwa nani ikiwa macho yangu yangekuwa ya bluu, kama ya dada yangu, badala ya kahawia. Sikuuliza kama ningekuwa na furaha zaidi na talanta ya muziki badala ya lugha. Ni kosa hili moja tu katika jenomu yangu lingehitaji kurekebishwa, na ningekuwa mimi, ila bora zaidi.
Hatimaye, hii nafsi kamilifu ya kivuli ilififia, kwa sababu nyingi. Lakini mwaka jana ilirudi kunisumbua, niliposoma kuhusu mfululizo wa matangazo yaliyowekwa na kampuni iitwayo Nucleus Genomics. Katika mfumo wote wa njia ya chini ya ardhi ya Jiji la New York, Nucleus iliahidi kwa wazazi watarajiwa kwamba sasa wanaweza kupata "mtoto wao bora." Kupitia mabango yaliy
